I have been given the incredible opportunity to chair the newly forming Clinical Advisory Board for the WPI. This group will interface with a Scientific Advisory Board to interpret the unfolding science for medical purposes. It promises to be an unprecedented fusion of diverse talent. The WPI is committed to sharing any clinically relevant scientific information that may advance our current approach to the disease. Patients need meaningful treatment now, not in a few years. From my perspective as a patient, progress seems excruciatingly slow, but I am hopeful that we can bridge the gap from the lab to the clinic and bypass years of avoidable suffering. All options must be considered, no stone left unturned. Sooner rather than later.
I am traveling to Reno this week in an attempt to fill my knowledge gap of the lab science and brainstorm where to go from here. I think the future looks brighter than it has in a very long time. I have to believe that if I have recovered enough for productivity, others can too. Returning to function is still a process for me, not a done deal, but the progress I’ve made is beginning to yield tangible dividends. Our own descent into hell and return to a life that is worth living has created an urgency in me to help find the answers. Those answers are closer than they have ever been.
I am filled with gratitude to the WPI for the considerable quality of life improvement that my family has already experienced as a direct result of their work. I will never be able to repay my debt adequately, but I will try.