Two months shy of three years, I discontinued antiretrovirals, began after receiving reports of positive XMRV cultures from VIP Dx in January 2010. Ali and I started AZT and Isentress in March 2010, added Viread in May 2010, discontinued AZT … Continue reading
Friends are writing to me not understanding why I don’t turn my back on Reno and stop thinking about it… I wish I could, but I am getting mail regularly about how poorly patients are being treated currently; please read … Continue reading
My muse left on extended vacation when the Lipkin XMRV study and subsequent press conference succeeded in discrediting retroviruses as a possible explanation for ME/CFS, with lots of important questions still left unanswered. The discussion reverted to whether or not it is a real … Continue reading
My thoughts keep coming back to this paragraph on the CFS Patient Advocate blog: Mady Horning gave a fine talk, echoing the one she gave in Florida in January. That talk can be accessed here. She spoke of the terrain and genetic … Continue reading
The world will not be destroyed by those who do evil, but by those who watch them without doing anything. ~ Albert Einstein When I started this blog, I promised to share my journey as it unfolded, before knowing the outcome. My goal was always to explore … Continue reading
It’s been a very strange and unusual three years. The Lipkin study was the closing of the door opened by the Science paper in October 2009. For me, the shift from thinking about neuroborreliosis to retroviral causation for ME/CFS led … Continue reading
Believing I had written my least controversial blog ever, I am confronted yet again with how unconventional it is for a doctor to share their evolving thoughts publicly. If freely sharing information is revolutionary, what revolution are we talking about … Continue reading
To scientists and the CFS community: I have updated my ongoing one person anti-retroviral treatment study of a patient with chronic lymphocytic leukemia and CFS. I have been on this treatment since 5/27/10. My first response to AZT and raltegravir lasted through March … Continue reading
The Parable of the Starfish One morning an elderly man was walking on a nearly deserted beach after a big storm had washed up thousands and thousands of starfish. He came upon a boy who was picking them … Continue reading
I believe this demonstrates a social ‘immune system’ in science which is remarkable for its ability to distinguish ‘self’ from ‘other’. ~ From my email I feel like we are post-op. The patient got opened, the problem identified and resected, … Continue reading